請選擇活動:
「New Drug, New Hope」
  明報專欄:罕見病藥的to give or not to give [Zoom in] [Article link: Mingpao]
       
 

明報專訪:Josy有夢

(2017/10/22)

[Zoom in]

[Article link: Mingpao]
       
 

脊髓肌肉萎縮症家庭到特首辦請願

(2017/10/08)

[Zoom in]

[Article link: Apple Daily]

[Article link: Mingpao]

[TVB News Video Clip]

       
 

Families of SMA patient attending Legislative Council: Hearing on huge drug expense

(2017/07/18)

Article Link: on.cc Full video of Meeting by the Joint Subcommittee on Long-term Caring Policy (Start frin 26:00)
       
  「覺光法師慈善其金覺念計劃贊助」--「SMA新藥物曙光初現 -- 與我何干」研討會

(2017/07/05)

[Zoom-in]

[Click here to learn more]
  Reply from Government to FSMA: Secrectary for Food & Health (Charvis Li)

(2017/02/17)

[Zoom-in] [English Version]
  FSMA: Letter to the Government

(2017/01/26)

[Zoom-in]

Letter to Chairman of Hospital Authority
Professor Leong Chi-yan

[Zoom-in]

Letter to Secretary for Food and Health of Hong Kong
Dr. Ko Wing-man

       
  3名SMA臨床測試新藥Spinraza Article link: SCMP Article link: Mingpao
       
 

「覺光法師慈善其金覺念計劃贊助」--「SMA醫學發報及會員交流會」

(2016/08//08)

[Zoom-in]  
       
       
       
       
       
  Spinraza approved by following countries:

Canada: 2017/07/04
Japan: 2017/07/03
Europe: 2017/06/01

 
   
   
   
 
 
 
 

 

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