Families of SMA Charitable Trust is founded in 1998 by professionals from various business sectors and concerned parents of children with Spinal Muscular Atrophy (SMA) who understand so profoundly the suffering of the SMA victims and their families.

Our Mission Statement:
"To help in the relief of hardship and suffering of patients afflicted with Spinal Muscular Atrophy (SMA) and their family members."

Our charitable objectives:

  • To provide practical and emotional support to patients with Spinal Muscular Atrophy (SMA) and their family members in order to facilitate proactive health management as well as aggressive medical intervention when necessary;

  • To provide support services, donation and/or free loan of medical equipment and other
    para-medical items to needy SMA patients and their families so that they can continue to
    seek proper medical help and be able to face challenges associated with SMA;

  • To manage a Central Registry of SMA patients in Hong Kong for the enhancement of
    co-operation with health sectors and serve as research base to find an early cure and treatment which are presently not available;

  • To promote public awareness, understanding and education of SMA patients, their families, professionals on health management and the latest medical research findings and discoveries.

The ultimate goal of the Trust is to help the SMA victims and their families to cope with the devastation of SMA and to find an early treatment and cure for this terrible disease.

Please Click the Box to View More Information on Our Financial Status.

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